Mile 80

John Schouest. 20 years old. Rehab / Guillain-Barre Syndrome champion.

Mile Sponsor: Dr. Ann Tilton

John Schouest

In the fall of his junior year, 17-year-old John Schouest of Thibodaux was at the top of his game. Just days after winning a regional cross-country meet, John began experiencing unusual symptoms: tingling in his fingers, trouble smiling, and difficulty walking. What started as a few strange signs quickly escalated, and by Thanksgiving, John couldn’t walk at all. After being diagnosed with Guillain-Barré syndrome, and later the chronic form known as CIDP (Chronic Inflammatory Demyelinating Polyneuropathy), John was admitted to Manning Family Children’s, where he faced the greatest challenge of his life.

What followed was a grueling journey of recovery that included intubation, immunotherapy, and an intensive rehab program.Though he was initially too weak to sit up or feed himself, his determination never wavered. With every small victory—regaining grip strength, standing with assistance, climbing stairs—John pushed forward with the goal of walking in his sister’s February wedding.

The hospital staff was so inspired by his commitment that they practiced wedding-specific movements with him, including boarding a party bus and walking down the aisle with a walker. And he did it. John’s story became a symbol of resilience not only for his care team but also for Manning Family Children’s CEO Lou Fragoso, who met him during his hallway therapy walks and promised to join him for his first 5K post-recovery. True to his word, Fragoso showed up, as did John’s therapists, to cheer him on as he walked the final stretch of the race—another milestone in a remarkable comeback.

John Schouest
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“One day, the mountain that is in front of you will be so far behind, it will barely be visible in the distance. But the person you become in learning to get over it… that will stay with you forever. And that is the point of the mountain.” – Brianna Wiest