Mile 5
Ahnalysse Veazey. 3 years old. Genetics & Heart Care warrior.
Mile Sponsor: Dr. Tom Kimball and Dana Kimball
Baby Ahnalysse was born with supravalvular aortic stenosis (SVAS), a heart defect that develops while the baby is in utero. Babies born with this condition have a narrowed large blood vessel that carries blood from the heart to throughout the body. This condition typically is associated with a birth defect called Williams syndrome.
Williams syndrome (WS) is associated with developmental delays and often medical challenges throughout the body, and is a rare genetic disorder that occurs in about one in 8,000 births. Babies with WS have both genetic and neurological factors which often affect social and emotional skills development.
The family received genetic testing and cardiac care at Manning Family Children’s – a three-and-a-half-hour drive from home. In April 2024, heart surgery was performed to correct the aortic stenosis. With heart surgery in the rear-view mirror, today Ahnalysse is thriving. She is walking and running, eating and loves to play with her toys. She will be continued to be monitored by genetics as she grows, with all the support she and her family need. The Veazey Family was thrilled to recently receive the news that Ahnalysse is healed, and has a minimal chance of needing any additional heart related surgeries in the future.
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